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The Rare and Resilient - ONE in 5000 Podcast shares stories and information with members of the Imperforate Anus (IA) / Anorectal Malformation (ARM) global community. Produced by the ONE in 5000 Foundation, it is a resource for families, friends, teachers and health professionals to discover more about this relatively unknown condition and build a community of support and understanding for those living with it and their families. For further information, please refer to our www.onein5000foundation.org website. Podcast Disclaimer: This podcast series is presented for the purposes of sharing information and experiences with the IA/ARM community. The ONE in 5000 Foundation Inc. accepts no legal liability whatsoever arising from or connected to, the accuracy, reliability, currency, completeness of any material provided in this Series or the Interviews posted as part of it.
Episodes
Monday Aug 16, 2021
Monday Aug 16, 2021
For episode 14 we are joined Mark from USA, who is the Dad of a 3 1/2 year old son who was born with IA/ARM, Neurogenic Bladder, Single Kidney and also diagnosed with a Tethered Cord at five months of age. Mark shares his personal experience from a fathers perspective, and details the journey he and his wife Holly have been on to get the specialised care for their son and details the challenges they have faced getting the right care for their son with complex medical issues.
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