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The Rare and Resilient - ONE in 5000 Podcast shares stories and information with members of the Imperforate Anus (IA) / Anorectal Malformation (ARM) global community. Produced by the ONE in 5000 Foundation, it is a resource for families, friends, teachers and health professionals to discover more about this relatively unknown condition and build a community of support and understanding for those living with it and their families. For further information, please refer to our www.onein5000foundation.org website. Podcast Disclaimer: This podcast series is presented for the purposes of sharing information and experiences with the IA/ARM community. The ONE in 5000 Foundation Inc. accepts no legal liability whatsoever arising from or connected to, the accuracy, reliability, currency, completeness of any material provided in this Series or the Interviews posted as part of it.
Episodes
Thursday Sep 02, 2021
Thursday Sep 02, 2021
For episode 16, we are joined by 11 year old Jack and his mother Mary from Canada. Jack is such an extraordinary boy who was born with IA/ARM and associated VACTERL issues and decided he wanted to share his story in the book. He is mature beyond his years as he shares his story and his mother Mary gives us an insight in to the many challenges they have faced together from his early years to the adjusting to school and wonderful supports they have in place. With kids like Jack as role models for other IA/ARM kids, our community is very fortunate.
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