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The Rare and Resilient - ONE in 5000 Podcast shares stories and information with members of the Imperforate Anus (IA) / Anorectal Malformation (ARM) global community. Produced by the ONE in 5000 Foundation, it is a resource for families, friends, teachers and health professionals to discover more about this relatively unknown condition and build a community of support and understanding for those living with it and their families. For further information, please refer to our www.onein5000foundation.org website. Podcast Disclaimer: This podcast series is presented for the purposes of sharing information and experiences with the IA/ARM community. The ONE in 5000 Foundation Inc. accepts no legal liability whatsoever arising from or connected to, the accuracy, reliability, currency, completeness of any material provided in this Series or the Interviews posted as part of it.
Episodes
Sunday Oct 24, 2021
Sunday Oct 24, 2021
For Episode 20, to celebrate Down Syndrome Awareness month we are joined by Cassandra from Florida USA who shares the story of her beautiful son 22 month old Malachi who was born with "Imperforate Anus/Anorectal Malformation without fistula" and Down Syndrome (Trisomy 21). The classification of "IA/ARM without fistula" is a unique characteristic which is found in only 5% of Anorectal Malformations cases with 95% of children also diagnosed with Down Syndrome. Cassandra gives us an incredible insight into the continual challenges Malachi has endured and the passion she has for advocating for a very special community. I know Malachi's story will touch the hearts of us all.
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