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The Rare and Resilient - ONE in 5000 Podcast shares stories and information with members of the Imperforate Anus (IA) / Anorectal Malformation (ARM) global community. Produced by the ONE in 5000 Foundation, it is a resource for families, friends, teachers and health professionals to discover more about this relatively unknown condition and build a community of support and understanding for those living with it and their families. For further information, please refer to our www.onein5000foundation.org website. Podcast Disclaimer: This podcast series is presented for the purposes of sharing information and experiences with the IA/ARM community. The ONE in 5000 Foundation Inc. accepts no legal liability whatsoever arising from or connected to, the accuracy, reliability, currency, completeness of any material provided in this Series or the Interviews posted as part of it.
Episodes
Tuesday Nov 09, 2021
Tuesday Nov 09, 2021
For episode 21 we are joined by Suzie from Kansas, USA who is the mother of 10 year old Kaden. She shares their journey of him being born with IA/ARM and how the family made the decision to travel interstate to Cincinnati Children's Colorectal Centre to have the PSARP surgery. She also details how having the Malone/ACE surgery has improved Kaden's life significantly, as well as the wonderful support they receive from his school and the importance of a mental health professional to assist with coping strategies.
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