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The Rare and Resilient - ONE in 5000 Podcast shares stories and information with members of the Imperforate Anus (IA) / Anorectal Malformation (ARM) global community. Produced by the ONE in 5000 Foundation, it is a resource for families, friends, teachers and health professionals to discover more about this relatively unknown condition and build a community of support and understanding for those living with it and their families. For further information, please refer to our www.onein5000foundation.org website. Podcast Disclaimer: This podcast series is presented for the purposes of sharing information and experiences with the IA/ARM community. The ONE in 5000 Foundation Inc. accepts no legal liability whatsoever arising from or connected to, the accuracy, reliability, currency, completeness of any material provided in this Series or the Interviews posted as part of it.
Episodes
Wednesday Feb 02, 2022
Wednesday Feb 02, 2022
For episode 24, we are joined by Billie from England, who is the mother of 14 month old year Jimmy, who was born with IA/ARM and also hypospadias, which is a recognised associated issue in some IA/ARM boys. Billie details how they were first told that their unborn baby was a girl, then advised he was a boy by a different Sonographer within a month. Then at birth the doctor told them that they needed to do further examination as they were unsure of the gender, and once recognised as a boy, they were then told of his IA/ARM diagnosis. Billie shares their journey with Jimmy who makes some "guest appearances" in a very emotional interview, which I know will resonate with so many families.
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