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The Rare and Resilient - ONE in 5000 Podcast shares stories and information with members of the Imperforate Anus (IA) / Anorectal Malformation (ARM) global community. Produced by the ONE in 5000 Foundation, it is a resource for families, friends, teachers and health professionals to discover more about this relatively unknown condition and build a community of support and understanding for those living with it and their families. For further information, please refer to our www.onein5000foundation.org website. Podcast Disclaimer: This podcast series is presented for the purposes of sharing information and experiences with the IA/ARM community. The ONE in 5000 Foundation Inc. accepts no legal liability whatsoever arising from or connected to, the accuracy, reliability, currency, completeness of any material provided in this Series or the Interviews posted as part of it.
Episodes
Monday Feb 21, 2022
Monday Feb 21, 2022
For episode 26 we are joined by Angel from Queensland Australia, who is the mother of 5 year old Wolf. She shares their journey of him being born with IA/ARM and having to have life saving colorectal and heart surgery in the first week of his life. Wolf got his MACE/Malone at an early age and Angel details their daily routine which has enabled him to adapt to school as well as his love for participating in sport, where he recently won medals in Jujitsu. We also discuss how proud Angel is of her Indigenous heritage and how she pays respect to her culture by now creating her own incredible Aboriginal artwork.
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