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The Rare and Resilient - ONE in 5000 Podcast shares stories and information with members of the Imperforate Anus (IA) / Anorectal Malformation (ARM) global community. Produced by the ONE in 5000 Foundation, it is a resource for families, friends, teachers and health professionals to discover more about this relatively unknown condition and build a community of support and understanding for those living with it and their families. For further information, please refer to our www.onein5000foundation.org website. Podcast Disclaimer: This podcast series is presented for the purposes of sharing information and experiences with the IA/ARM community. The ONE in 5000 Foundation Inc. accepts no legal liability whatsoever arising from or connected to, the accuracy, reliability, currency, completeness of any material provided in this Series or the Interviews posted as part of it.
Episodes
Friday Mar 04, 2022
Friday Mar 04, 2022
For episode 28, we are joined by Daria from Barcelona, Spain, who is the mother of 5 year old Daniel. She shares their journey of him being born with IA/ARM, Tracheo-Esophageal Fistula and Tethered Cord. Daniel was born in the Prague, Czech Republic and three years ago Daria and her family made the massive decision to move overseas to Spain to ensure Daniel was given the best opportunities for his medical and educational needs. Daria also shares her passion for raising awareness through her artwork and how Daniel got up in front of his school class and explained his conditions, which is so brave and amazing at his tender age.
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