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The Rare and Resilient - ONE in 5000 Podcast shares stories and information with members of the Imperforate Anus (IA) / Anorectal Malformation (ARM) global community. Produced by the ONE in 5000 Foundation, it is a resource for families, friends, teachers and health professionals to discover more about this relatively unknown condition and build a community of support and understanding for those living with it and their families. For further information, please refer to our www.onein5000foundation.org website. Podcast Disclaimer: This podcast series is presented for the purposes of sharing information and experiences with the IA/ARM community. The ONE in 5000 Foundation Inc. accepts no legal liability whatsoever arising from or connected to, the accuracy, reliability, currency, completeness of any material provided in this Series or the Interviews posted as part of it.
Episodes
Monday Jun 06, 2022
Monday Jun 06, 2022
For episode 34, we are joined by Noah, who is 14 years old and was born with IA/ARM and his mother Amy as they both talk openly about Noah’s and their family’s journey. Noah is such a charismatic and confident boy who shares how he has coped with the challenges he has faced with his health and how he went from wanting to keep his condition private to now being public about it. Amy also provides a great insight into how they had to navigate their way through the medical system when Noah was younger which finally found them at a dedicated colorectal center and where Noah had life-changing re-do surgeries and started on a bowel management program that has changed Noah’s quality of life in such a positive way.
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