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The Rare and Resilient - ONE in 5000 Podcast shares stories and information with members of the Imperforate Anus (IA) / Anorectal Malformation (ARM) global community. Produced by the ONE in 5000 Foundation, it is a resource for families, friends, teachers and health professionals to discover more about this relatively unknown condition and build a community of support and understanding for those living with it and their families. For further information, please refer to our www.onein5000foundation.org website. Podcast Disclaimer: This podcast series is presented for the purposes of sharing information and experiences with the IA/ARM community. The ONE in 5000 Foundation Inc. accepts no legal liability whatsoever arising from or connected to, the accuracy, reliability, currency, completeness of any material provided in this Series or the Interviews posted as part of it.
Episodes
Wednesday Nov 09, 2022
Wednesday Nov 09, 2022
For episode 38, we are joined by Kari from South Carolina, USA who is a mother of two children with her 14 month old son Luca born with IA/ARM as well as associated VACTERL conditions. Kari shares with us the incredible challenges Luca faced in his initial months after his birth and the subsequent investigation finding he had a major issue due to his initial colostomy surgery, which then required revision surgery. Kari then made the decision to seek specialised care for Luca which led her to transfer his care to a dedicated multidisciplinary Colorectal centre, which has resulted in a much improved quality of life for Luca.
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