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The Rare and Resilient - ONE in 5000 Podcast shares stories and information with members of the Imperforate Anus (IA) / Anorectal Malformation (ARM) global community. Produced by the ONE in 5000 Foundation, it is a resource for families, friends, teachers and health professionals to discover more about this relatively unknown condition and build a community of support and understanding for those living with it and their families. For further information, please refer to our www.onein5000foundation.org website. Podcast Disclaimer: This podcast series is presented for the purposes of sharing information and experiences with the IA/ARM community. The ONE in 5000 Foundation Inc. accepts no legal liability whatsoever arising from or connected to, the accuracy, reliability, currency, completeness of any material provided in this Series or the Interviews posted as part of it.
Episodes
Saturday Jan 07, 2023
Saturday Jan 07, 2023
For episode 40, we are joined by Bristol from Tennessee, USA who is the mother of two and her youngest son Roman who is two and a half was born with IA/ARM. Bristol shares her journey with Roman and details the delays in his surgeries which has left him still with his Stoma Bag and her questioning whether to go ahead with the surgery or keep his colostomy as things are going really for him at the moment. We also discuss a video she made showing Roman pretending she also had a bag and how it’s been viewed over 1.3 millions times, and his special relationship with his “Ostomy Bear.”
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