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The Rare and Resilient - ONE in 5000 Podcast shares stories and information with members of the Imperforate Anus (IA) / Anorectal Malformation (ARM) global community. Produced by the ONE in 5000 Foundation, it is a resource for families, friends, teachers and health professionals to discover more about this relatively unknown condition and build a community of support and understanding for those living with it and their families. For further information, please refer to our www.onein5000foundation.org website. Podcast Disclaimer: This podcast series is presented for the purposes of sharing information and experiences with the IA/ARM community. The ONE in 5000 Foundation Inc. accepts no legal liability whatsoever arising from or connected to, the accuracy, reliability, currency, completeness of any material provided in this Series or the Interviews posted as part of it.
Episodes
Friday Jan 13, 2023
Friday Jan 13, 2023
For episode 41, we are joined by Holly and Matt from Florida, USA who are the parents of their 18 month old son Edison who was born with IA/ARM as well as a congenital heart condition and associated VACterL issues. Holly takes us through their journey of initial heart diagnosis during her pregnancy, then the shock of the IA/ARM at birth and then having to deal with airway issues and navigating his multiple surgeries. Matt then shares his perspective as a Dad and how his personal medical experiences has enabled him to support Holly and advocate for Edison.
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