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The Rare and Resilient - ONE in 5000 Podcast shares stories and information with members of the Imperforate Anus (IA) / Anorectal Malformation (ARM) global community. Produced by the ONE in 5000 Foundation, it is a resource for families, friends, teachers and health professionals to discover more about this relatively unknown condition and build a community of support and understanding for those living with it and their families. For further information, please refer to our www.onein5000foundation.org website. Podcast Disclaimer: This podcast series is presented for the purposes of sharing information and experiences with the IA/ARM community. The ONE in 5000 Foundation Inc. accepts no legal liability whatsoever arising from or connected to, the accuracy, reliability, currency, completeness of any material provided in this Series or the Interviews posted as part of it.
Episodes
Thursday Jan 19, 2023
Thursday Jan 19, 2023
For episode 42, we are joined by Hattie from Peterborough, England, who is the mother of nearly 4 year old daughter Willow who was diagnosed with Anal Stenosis at birth. But after continued issues with her bowels and Hattie pursuing research and further medical opinion, Willow was diagnosed at the age of 3 with the congenital condition, called “Currarino Syndrome” which is associated with IA/ARM. Willow at the same time was found to have a “Tethered Cord” which required major surgery.
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