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The Rare and Resilient - ONE in 5000 Podcast shares stories and information with members of the Imperforate Anus (IA) / Anorectal Malformation (ARM) global community. Produced by the ONE in 5000 Foundation, it is a resource for families, friends, teachers and health professionals to discover more about this relatively unknown condition and build a community of support and understanding for those living with it and their families. For further information, please refer to our www.onein5000foundation.org website. Podcast Disclaimer: This podcast series is presented for the purposes of sharing information and experiences with the IA/ARM community. The ONE in 5000 Foundation Inc. accepts no legal liability whatsoever arising from or connected to, the accuracy, reliability, currency, completeness of any material provided in this Series or the Interviews posted as part of it.
Episodes
Friday Feb 03, 2023
Friday Feb 03, 2023
For episode 43, we are joined by Taylorann from Ohio, USA, who is 22 years old and was born with IA/ARM, as well as Neurogenic Bladder and associated VACTERL issues. Taylorann shares with us, her extraordinary life story of dealing with the physical and emotional struggles she has endured and being told at an early age that she was "the 1% of the 1%" due to the complicated nature of her health issues and how it impacted her ability to attend school. We also discuss the very important topic of how her health has impacted on her siblings. I'm sure everyone who listens to this podcast will be in awe of this wonderful young lady.
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