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The Rare and Resilient - ONE in 5000 Podcast shares stories and information with members of the Imperforate Anus (IA) / Anorectal Malformation (ARM) global community. Produced by the ONE in 5000 Foundation, it is a resource for families, friends, teachers and health professionals to discover more about this relatively unknown condition and build a community of support and understanding for those living with it and their families. For further information, please refer to our www.onein5000foundation.org website. Podcast Disclaimer: This podcast series is presented for the purposes of sharing information and experiences with the IA/ARM community. The ONE in 5000 Foundation Inc. accepts no legal liability whatsoever arising from or connected to, the accuracy, reliability, currency, completeness of any material provided in this Series or the Interviews posted as part of it.
Episodes
Monday Feb 06, 2023
Monday Feb 06, 2023
For episode 44, we are joined by Jess from Shropshire, England, who is the mother of 3 year old (almost 4) daughter Felicity who was born with IA/ARM. Jess shares their journey which started with her IA/ARM not being diagnosed for six days after Felicity becoming very ill and required urgent hospitalisation and subsequent surgery. We then discuss the challenges IA/ARM parents must navigate (i.e. Stoma Bag; Dilations; Bowel Management & Potty Training etc.) Jess also details how Felicity at 3 years of age, remarkably administers her own suppositories so she can go to the potty.
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