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The Rare and Resilient - ONE in 5000 Podcast shares stories and information with members of the Imperforate Anus (IA) / Anorectal Malformation (ARM) global community. Produced by the ONE in 5000 Foundation, it is a resource for families, friends, teachers and health professionals to discover more about this relatively unknown condition and build a community of support and understanding for those living with it and their families. For further information, please refer to our www.onein5000foundation.org website. Podcast Disclaimer: This podcast series is presented for the purposes of sharing information and experiences with the IA/ARM community. The ONE in 5000 Foundation Inc. accepts no legal liability whatsoever arising from or connected to, the accuracy, reliability, currency, completeness of any material provided in this Series or the Interviews posted as part of it.
Episodes
Monday Feb 20, 2023
Monday Feb 20, 2023
For episode 45, we are joined by Lily from Washington State, USA, who is 19 years old and was born with IA/ARM, as well as associated VACTERL issues. Lily shares her truly remarkable story of being born in China, and then taken to an orphanage and eventually taken in by a foster family at nine months old until the age of five and a half when she was adopted by an American family. We discuss the lack of specialised medical care in China and the ramifications of this when she got to the USA and had to endure many surgeries for her medical issues. Lily is now in college studying to be a pediatric nurse and I'm sure everyone will be inspired by this wonderful young woman's incredible journey and positive outlook on life.
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