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The Rare and Resilient - ONE in 5000 Podcast shares stories and information with members of the Imperforate Anus (IA) / Anorectal Malformation (ARM) global community. Produced by the ONE in 5000 Foundation, it is a resource for families, friends, teachers and health professionals to discover more about this relatively unknown condition and build a community of support and understanding for those living with it and their families. For further information, please refer to our www.onein5000foundation.org website. Podcast Disclaimer: This podcast series is presented for the purposes of sharing information and experiences with the IA/ARM community. The ONE in 5000 Foundation Inc. accepts no legal liability whatsoever arising from or connected to, the accuracy, reliability, currency, completeness of any material provided in this Series or the Interviews posted as part of it.
Episodes
Saturday May 06, 2023
Saturday May 06, 2023
For episode 48, we are joined by Sharone from New York USA, who is the mother of her eight year old son David, who was born with IA/ARM, as well as VACTERL Association. Sharone shares her unique perspective as being a long term NICU Nurse, then becoming a NICU parent after David was born. We also hear how David has navigated his journey of having constant accidents and then finally finding a bowel regime that has been life changing for him. Also, we discuss how David was diagnosed with a tethered cord at the age of eight which required subsequent surgery.
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