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The Rare and Resilient - ONE in 5000 Podcast shares stories and information with members of the Imperforate Anus (IA) / Anorectal Malformation (ARM) global community. Produced by the ONE in 5000 Foundation, it is a resource for families, friends, teachers and health professionals to discover more about this relatively unknown condition and build a community of support and understanding for those living with it and their families. For further information, please refer to our www.onein5000foundation.org website. Podcast Disclaimer: This podcast series is presented for the purposes of sharing information and experiences with the IA/ARM community. The ONE in 5000 Foundation Inc. accepts no legal liability whatsoever arising from or connected to, the accuracy, reliability, currency, completeness of any material provided in this Series or the Interviews posted as part of it.
Episodes
Saturday Jun 05, 2021
Saturday Jun 05, 2021
For episode 5 we are joined by Blake (7 years old) from Texas USA, who reads his short story of living with IA/ARM. Also, his twin brother Austin talks about how he supports his brother. Their wonderful mother Amanda, then takes us on an emotional journey detailing their family story and gives us an insight into the battles she has faced dealing with the USA Healthcare system in trying to get Blake's medical needs met.
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