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The Rare and Resilient - ONE in 5000 Podcast shares stories and information with members of the Imperforate Anus (IA) / Anorectal Malformation (ARM) global community. Produced by the ONE in 5000 Foundation, it is a resource for families, friends, teachers and health professionals to discover more about this relatively unknown condition and build a community of support and understanding for those living with it and their families. For further information, please refer to our www.onein5000foundation.org website. Podcast Disclaimer: This podcast series is presented for the purposes of sharing information and experiences with the IA/ARM community. The ONE in 5000 Foundation Inc. accepts no legal liability whatsoever arising from or connected to, the accuracy, reliability, currency, completeness of any material provided in this Series or the Interviews posted as part of it.
Episodes
Friday Jun 11, 2021
Friday Jun 11, 2021
For episode 6, we are joined by a wonderful family from New Jersey, USA. Aiden (14 years old), who was born with IA/ARM and his parents Dave & Michelle all share their respective personal experiences and their journey as a family.
Comments (2)
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Thank you so much Aiden and parents! I am a mother of a 2-yr old born with IA/ARM among other things and your podcast has been so inspirational. You are helping families like mine cope since now we have other role models to look up to. I am from Spain and I had not heard of the Youth rally and it’s activities. You have thought me of a fun opportunity in the horizon for my son to enjoy. Your mom and dad sounded so much like my husband and I…. I can relate 100% ! Thank you so much for sharing:)
Wednesday Aug 04, 2021
My great grandson was born with IA/ARM. BEING new to this this pod cast is wonderful. As we walk through life we find strength in everything. These parents are so strong. These children are so strong. Thank you
Friday Jun 25, 2021
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