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The Rare and Resilient - ONE in 5000 Podcast shares stories and information with members of the Imperforate Anus (IA) / Anorectal Malformation (ARM) global community. Produced by the ONE in 5000 Foundation, it is a resource for families, friends, teachers and health professionals to discover more about this relatively unknown condition and build a community of support and understanding for those living with it and their families. For further information, please refer to our www.onein5000foundation.org website. Podcast Disclaimer: This podcast series is presented for the purposes of sharing information and experiences with the IA/ARM community. The ONE in 5000 Foundation Inc. accepts no legal liability whatsoever arising from or connected to, the accuracy, reliability, currency, completeness of any material provided in this Series or the Interviews posted as part of it.
Episodes
Saturday Jun 19, 2021
Saturday Jun 19, 2021
For episode 8 we are joined by Verlie from Perth, Australia who is the mother of an amazing young man, 8 year old Dexter. She shares their truly remarkable journey of him being born with IA/ARM and getting a Malone/ACE at the age of 3, then having open heart surgery at the age of 4 and being diagnosed with Autism and ADHD at the age of 7. In the last 12 months Dexter has also been diagnosed with Elhers Danlos Syndrome. This episode will take everyone through many emotions, but the overriding feeling will be absolute love and respect for how a family can cope with so much adversity but their unconditional love and commitment has got them through, as well as the incredible resilience of their amazing son Dexter.
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