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The Rare and Resilient - ONE in 5000 Podcast shares stories and information with members of the Imperforate Anus (IA) / Anorectal Malformation (ARM) global community. Produced by the ONE in 5000 Foundation, it is a resource for families, friends, teachers and health professionals to discover more about this relatively unknown condition and build a community of support and understanding for those living with it and their families. For further information, please refer to our www.onein5000foundation.org website. Podcast Disclaimer: This podcast series is presented for the purposes of sharing information and experiences with the IA/ARM community. The ONE in 5000 Foundation Inc. accepts no legal liability whatsoever arising from or connected to, the accuracy, reliability, currency, completeness of any material provided in this Series or the Interviews posted as part of it.
Episodes
Saturday Jul 03, 2021
Saturday Jul 03, 2021
For episode 11 we are joined by Soma from Iraq (Kurdistan region), who is the mother of two and half year old Kaze, who was born with IA/ARM (Cloaca). She shares their remarkable journey of how she had to travel to Germany alone with her daughter to get life changing surgery as her husband and eldest daughter were refused visas, and their family were apart for three months. Her story will touch your heart as she details the immense difficulties a family endures in a country where the medical environment and society is very challenging when it comes dealing with a complex medical condition.
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